I study how people living with epilepsy and their caregivers seek support, manage health information, and use digital tools across the life course. My work combines computational and qualitative methods to inform technologies that are more accessible, trustworthy, and responsive to real needs.
My research follows the practical, emotional, and informational work of living with epilepsy—from adolescence through later life.
Using large-scale analysis and close qualitative reading of epilepsy communities, I examine how adolescents, adults, older adults, and caregivers share experiential knowledge, interpret seizures, and negotiate safety, autonomy, and support.
I investigate epilepsy apps and self-tracking practices through accessibility audits, app quality assessment, user reviews, and interviews with people living with epilepsy and caregivers.
A secondary strand of my work studies how young people and online communities make sense of overreliance on AI companions, and how platforms govern emotionally intimate interactions.
These study details describe the research program; manuscript publication status is intentionally not implied.
Analyzed to characterize symptoms, treatment experiences, daily life, seizure activity, and social-support needs.
Evaluated alongside 2,026 app-store reviews to examine self-management coverage, quality, accessibility, and user experience.
Interviewed about self-tracking, social support, and hopes for flexible, trustworthy, privacy-conscious technologies.
Across my projects, people continually weigh the potential value of technology against practical effort, emotional safety, privacy, cost, accessibility, and the realities of care relationships. I use that tension as a design starting point rather than treating engagement as an individual failure.